We saw the new neurologist

We met with the new neurologist a week and a half a go at Children's hospital. I came here to post about it a few times and just couldn't get it into writing. It is such a hard topic for us still. We waited for this appointment for almost a year. This is the Dr who was recommended to us by 2 pediatrician's and the neurologist at the Floating hospital for children that we saw. He is "the best of the best in the world as far as Tourette's Syndrome goes". So we waited for the appointment. He spent a long time talking to us and Alison and going over her history. He did several different types of tests and exams. He said her diagnosis of Gilles de la Tourette's Syndrome is correct. She has it in the moderate range of the spectrum. He said she has fairly significant ADHD too. We knew both of these, but coming from him, "the best", it seemed so final. He agreed with my choice a while back to stop all medicines. We agreed that we will only use one of them short term when her ticcing is at it's most severe. right now we are in the calm period and have been for a couple of months. Minimal tics. But it won't last he told us. We knew this realistically, but as a parent you think maybe it is done and we can move on. You don't want to think that they will come back. I finally see my calm, happy Alison back and to know this will come back and stress her again is awful. More than awful. But we will deal with it as it comes and will get through it. I know we will.